To Our Close Friends and Family,
Our youngest Son Owen (13) was diagnosed with Stargardt's Disease in kindergarten. Stargardt's disease is a rare genetic eye disorder affecting 1 in every 10,000 people. This disease causes retinal degeneration and vision loss, reducing and/or eliminating central vision, while preserving some of the periphery. Owen is currently learning to make the most of his remaining and deteriorating vision.
Owen has always loved the outdoors. For this love we helped Owen start a YouTube channel named Outdoors with Owen
Through his videos, Owen shares his adventures in fishing and sports. Please check out the channel, like, and subscribe if you like! This past summer in fact Owen learned to compete in a guided mini-triathlon. He rode a tandem bike for the first time, and then swam in open water and ran while tethered to a guide. It was his 1st time competing, and he finished 1st place! This race gave h...